By: Ashley P. Smith, New York magazine/Associated Press “I was in my mid-thirties and I was doing this really amazing job of finding a woman, and I found a beautiful girl,” she told me in our first conversation.
“She was a bit skinny, I didn’t think she’d be as athletic as I was, but I was like, this is it.”
After a month of trying, she’d decided on the girl who’d become her daughter.
“We’re just going to do it,” she said.
She was so happy, she said, that she forgot all about the body part that’s been part of her for years, the one that had her in the throes of pregnancy and childbirth.
“I’m a little bit of a freak, you know?” she said as we spoke about her new-found sense of independence.
When she got pregnant with the baby she named Bella, she didn’t know what she wanted for the next two years.
She wasn’t sure what she could expect in terms of food, shelter, clothing or even medicine, but she did know one thing: a lot of time, and a lot more.
I had to get up early, she explained, “because I was tired, and we had a lot going on.
But then it would just be me, my body and my baby.”
When Bella was born, her father was so concerned about the baby that he drove across the country to meet her and spend time with her.
“I’m the only one who knows how much she loves her father,” she explained.
At that point, the baby was still in her mother’s womb, but when she was born she was so tiny that her father could barely hold her.
“He was like a child,” she recalled.
After two months of caring for Bella, her dad took her to a clinic in his home state of New York.
“We got in the car and he told me he was going to take her,” she remembered.
“And I was in a bit of shock.
I thought, ‘Oh, my God, I’ve been waiting for this for two years.'”
When he came back from the clinic, he took her in his arms and carried her back to his home.
He had her for just over a week, and he’d already learned that she had a rare genetic disorder that made her susceptible to severe infections.
In the weeks after the birth, Bella’s doctors tested her to find out if she’d ever contracted the disease.
She was positive.
They brought Bella to a pediatrician, who diagnosed her with a severe form of her genetic disease.
For her entire pregnancy, she had to be constantly on the lookout for anything that might be a potential source of infection.
Bella’s doctors also discovered that the baby’s skin was brown and very sensitive.
“They were worried about how she was going the other way, and she’s so sensitive, and they were just like, ‘This is terrible,'” she said with a laugh.
The next few months were agonizing for Bella.
She spent every day in a hospital bed with her father and mother, constantly checking in on her, trying to stay on top of her condition.
Then, in December, a routine check-up revealed that Bella was showing signs of fever, vomiting, fever, and diarrhoea.
While she was in the hospital, doctors discovered that Bella had been exposed to a small number of bacteria that could be passed from mother to baby.
Doctors had also discovered a large amount of white blood cells, which were part of the immune system of the baby.
“The first thing I said was, ‘I can’t believe I’m not getting tested for this, because this is a life-changing disease,'” she recalled, laughing.
By then, Bella was so ill that she’d lost her appetite and had to lose weight to stay alive.
But her doctors had another surprise up their sleeve.
She had a mutation in her DNA.
There are two kinds of genetic mutations that can lead to rare genetic disorders, she told her doctor.
“One is the mutation that can cause a rare disease.
The other one is the one where it doesn’t cause a disease, but it doesn